A journey of hope for children with epilepsy

Tuesday 26 February 2019

This year ALARM Chair, Chris Walker has chosen to support The Daisy Garland Foundation; a family run, national registered charity, working exclusively with drug-resistant epilepsy and their families.

The charity was founded in 2004 in memory of the founder's daughter Daisy who suffered from complex epilepsy. Daisy tragically died in her sleep at the age of six from sudden unexpected death in epilepsy patients (SUDEP). 

Their goal is to maximise the quality of life for some of the 18,000 children in the UK living with drug-resistant epilepsy - a condition that destroys and shortens lives. 

ALARM Chair, Chris Walker said: "When my daughter Poppy was first diagnosed with epilepsy in 2016, my wife and I took it in turns to sleep as one of us needed to watch Poppy in case she had a seizure. Pure exhaustion led us to do some research and this is how we discovered The Daisy Garland Foundation.

We were lucky enough to be gifted an SATS monitor that tracks Poppy's heart rate and oxygen levels. The monitor emits a loud alarm where either of these vitals drop, which provides us with peace of mind, comfort and sleep. 

Every quarter Daisy Garland gives out a number of these monitors to help families who are affected by epilepsy. Each monitor costs around £600, however, we can't put a price on ours as it has saved Poppy’s life on a number of occasions."

Members will have the opportunity to donate to this worthwhile charity at the Risk Awards dinner on Monday 24 June during the Chair's charity raffle. Prizes include a Kindle, a Fitbit Alta and a Hotel Chocolat gift set, kindly gifted by our sponsors. 

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